A Matas Library Subject Guide to support research for the care of women from pregnancy until after delivery, the diagnosis and treatment of disorders of the female reproductive tract, plus the diagnosis and treatment of infertility and contraception.
Genetic Information Nondiscrimination Act (GINA)Genetic Alliance, the Genetics and Public Policy Center at the Johns Hopkins University, and the National Coalition for Health Professional Education in Genetics through funding by The Pew Charitable Trusts. May 2010.
Genetic AllianceGenetic Alliance engages individuals, families and communities to transform health.
Center for Genetics and SocietyA nonprofit information and public affairs organization working to encourage responsible uses and effective societal governance of human genetic and reproductive technologies and other emerging technologies. We work with a growing network of scientists, health professionals, civil society leaders, and others.
Caplan AL (2015) Chloe’s Law: A Powerful Legislative Movement Challenging a Core Ethical Norm of Genetic Testing. PLoS Biol 13(8): e1002219.The ethical norm governing genetic counselors involved in testing and screening for genetic conditions related to reproduction has been strict neutrality since the early 1970s: doctors and counselors were obligated to simply provide people with information to help them make decisions without actually guiding them toward a particular decision. What patients do with test results in terms of deciding whether to have a child or to continue a pregnancy after a diagnosis of Down syndrome, counselors were taught, is strictly up to them.
All of Us Research Program (NIH)-- historic effort to gather data from one million or more people living in the United States to accelerate research and improve health. By taking into account individual differences in lifestyle, environment, and biology, researchers will uncover paths toward delivering precision medicine.
Guide for Genetic Consultation by 